Your resources
We've put together a collection of resources about CF disease and treatment information for your use as well as to share with patients and caregivers.
Resources can be selected by audience or topic(s) of interest.
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Cystic Fibrosis Disease Overview
CF Care Team (for Case Managers)
General CF Information
Cystic fibrosis is a complex lifelong disease. To help case managers to better understand the disease, its cause, and the value of a cystic fibrosis care team. |
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Cystic Fibrosis Disease Overview
CF Care Team (for Case Managers)
General CF Information
Cystic fibrosis is a complex lifelong disease. To help case managers to better understand the disease, its cause, and the value of a cystic fibrosis care team. |
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Diagnosing Cystic Fibrosis
CF Care Team (for Case Managers)
General CF Information
Case managers will interact with patients already diagnosed with cystic fibrosis, but it is important for them to be familiar with the diagnostic process of the disease. |
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Diagnosing Cystic Fibrosis
CF Care Team (for Case Managers)
General CF Information
Case managers will interact with patients already diagnosed with cystic fibrosis, but it is important for them to be familiar with the diagnostic process of the disease. |
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Understanding Symptoms and Manifestations of CF
CF Care Team (for Case Managers)
General CF Information
Education about cystic fibrosis to better understand the complex medical profiles of individuals with the disease. |
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Understanding Symptoms and Manifestations of CF
CF Care Team (for Case Managers)
General CF Information
Education about cystic fibrosis to better understand the complex medical profiles of individuals with the disease. |
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Treating Cystic Fibrosis
CF Care Team (for Case Managers)
Treatment
In conversations with patients, case managers can help patients and caregivers understand their CF treatments. |
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Treating Cystic Fibrosis
CF Care Team (for Case Managers)
Treatment
In conversations with patients, case managers can help patients and caregivers understand their CF treatments. |
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Life Changes With CF
CF Care Team (for Case Managers)
Adherence
Learn how people with cystic fibrosis may manage their disease as they transition through life. |
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Life Changes With CF
CF Care Team (for Case Managers)
Adherence
Learn how people with cystic fibrosis may manage their disease as they transition through life. |
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Adherence to Treatment
CF Care Team (for Case Managers)
Adherence
A material to help case managers understand how important it is for patients with cystic fibrosis to maintain their treatment plans and medications. |
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Adherence to Treatment
CF Care Team (for Case Managers)
Adherence
A material to help case managers understand how important it is for patients with cystic fibrosis to maintain their treatment plans and medications. |
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Cystic Fibrosis Disease Overview
Patient/Caregiver (for Case Managers)
General CF Information
Cystic fibrosis is an inherited disease, which means CF is passed from parents to children. Find out what CF is, how it affects the body, what causes it, and how you can manage it. |
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Cystic Fibrosis Disease Overview
Patient/Caregiver (for Case Managers)
General CF Information
Cystic fibrosis is an inherited disease, which means CF is passed from parents to children. Find out what CF is, how it affects the body, what causes it, and how you can manage it. |
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Understanding Symptoms and Manifestations of CF
Patient/Caregiver (for Case Managers)
General CF Information
Cystic fibrosis disease progresses over time and may impact some people differently than it impacts others. |
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Understanding Symptoms and Manifestations of CF
Patient/Caregiver (for Case Managers)
General CF Information
Cystic fibrosis disease progresses over time and may impact some people differently than it impacts others. |
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Life Changes With CF
Patient/Caregiver (for Case Managers)
General CF Information
Living with cystic fibrosis may bring different challenges at different stages of life. |
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Life Changes With CF
Patient/Caregiver (for Case Managers)
General CF Information
Living with cystic fibrosis may bring different challenges at different stages of life. |
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Diagnosing Cystic Fibrosis
Patient/Caregiver (for Case Managers)
Treatment
Diagnosing cystic fibrosis is a multistep process. In addition to identifying any symptoms or family history of CF, a physician will perform additional tests to confirm a CF diagnosis. |
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Diagnosing Cystic Fibrosis
Patient/Caregiver (for Case Managers)
Treatment
Diagnosing cystic fibrosis is a multistep process. In addition to identifying any symptoms or family history of CF, a physician will perform additional tests to confirm a CF diagnosis. |
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Treating Cystic Fibrosis
Patient/Caregiver (for Case Managers)
Treatment
Today, people with cystic fibrosis benefit from specialized CF care and a range of treatment options. |
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Treating Cystic Fibrosis
Patient/Caregiver (for Case Managers)
Treatment
Today, people with cystic fibrosis benefit from specialized CF care and a range of treatment options. |
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Adherence to Treatment
Patient/Caregiver (for Case Managers)
Treatment
Daily treatments take time, patience, and motivation. Making a plan can help. |
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Adherence to Treatment
Patient/Caregiver (for Case Managers)
Treatment
Daily treatments take time, patience, and motivation. Making a plan can help. |
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Resources and Support
Patient/Caregiver (for Case Managers)
Support
Here are just a few support and assistance resources for people with cystic fibrosis, parents of a child with CF, and caregivers. |
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Resources and Support
Patient/Caregiver (for Case Managers)
Support
Here are just a few support and assistance resources for people with cystic fibrosis, parents of a child with CF, and caregivers. |
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Questions to Ask Your Healthcare Provider
Patient/Caregiver (for Case Managers)
Support
You’ve probably already had many conversations with your care team about cystic fibrosis, but as you grow older, new questions may come to mind. |
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Questions to Ask Your Healthcare Provider
Patient/Caregiver (for Case Managers)
Support
You’ve probably already had many conversations with your care team about cystic fibrosis, but as you grow older, new questions may come to mind. |
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Care for the Caregiver
Patient/Caregiver (for Case Managers)
Support
Are you a caregiver for someone with cystic fibrosis? If you are, this flashcard is all about you. |
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Care for the Caregiver
Patient/Caregiver (for Case Managers)
Support
Are you a caregiver for someone with cystic fibrosis? If you are, this flashcard is all about you. |
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Your CF Care Team
Patient/Caregiver (for Case Managers)
Support
Cystic fibrosis is a complex disease. It needs a team approach, with you or your loved one at the center. |
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Your CF Care Team
Patient/Caregiver (for Case Managers)
Support
Cystic fibrosis is a complex disease. It needs a team approach, with you or your loved one at the center. |
Quick links for your patients with CF
As a case manager, you’re dedicated to supporting people living with CF. Below are links to resources that are specific to helping your patients, and their caregivers, manage their disease. They can also help patients with CF connect to one another.
For more detailed information about these organizations, please refer to the "Cystic Fibrosis Support and Assistance "resource.
Boomer Esiason Foundation
www.esiason.org
Boomer Esiason Foundation
www.esiason.org
Cystic Fibrosis Lifestyle Foundation (CFLF)
https://milesforcf.org
CF Source
www.cfsource.com
CF Source
www.cfsource.com
Cystic Fibrosis Foundation (CFF)
www.cff.org
Cystic Fibrosis Research Institute (CFRI)
www.cfri.org
Cystic Fibrosis Lifestyle Foundation (CFLF)
https://milesforcf.org
Cystic Fibrosis Foundation (CFF)
www.cff.org
Cystic Fibrosis Research Institute (CFRI)
www.cfri.org
Everyday CF
www.everyday-cf.com
Everyday CF
www.everyday-cf.com